An Unequal Burden: Poor Patient-Provider Communication and Sickle Cell Disease
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Type of Work15 pages
journal articles postprints
Citation of Original PublicationCarlton Haywood Jr et al., An unequal burden: Poor patient–provider communication and sickle cell disease, Patient Education and Counseling Volume 96, Issue 2, August 2014, Pages 159-164 (2014), https://doi.org/10.1016/j.pec.2014.05.013
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Objective To assess disparities in the quality of healthcare provider communication experienced by African-American adults with and without sickle cell disease (SCD) in the U.S. Methods Poor provider communication was assessed by the Provider Communication subscale of the Consumer Assessment of Healthcare Plans and Systems survey. The SCD sample was obtained from participants in a multicenter observational study of healthcare experiences. The national African-American sample data was obtained from published national estimates. Results The SCD sample was more likely than the national sample to report poor communication in 3 out of 4 communication domains: listening (22.3% vs. 11.5%, p < 0.0001); showing respect (26.1% vs. 9.5%, p < 0.0001); and spending enough time (38.3% vs. 16.2%, p < 0.0001). Differences were consistent in young, but not old, patients and showed some variation by self-reported health status and education. Conclusions The communication difficulties experienced by persons with SCD do not appear reducible to their predominantly African-American race, but may result from more disease-specific factors. Practice implications Healthcare providers should take particular care in recognizing and demonstrating recommended communication skills with SCD patients as these patients may be particularly vulnerable to, and cognizant of, poor quality interactions.
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