Now showing items 1-4 of 4

    • Attitudes Towards Clinical Trials Among Patients with Sickle Cell Disease 

      Haywood, Carlton Jr.; Lanzkron, Sophie; Diener-West, Marie; Haythornthwaite, Jennifer; Strouse, John J.; Bediako, Shawn; Onojobi, Gladys; Beach, Mary Catherine; IMPORT Investigators (SAGE, 2014-02-13)
      Background A substantial number of planned clinical trials for sickle cell disease (SCD) have terminated early due to insufficient patient enrollment. Purpose To describe attitudes toward clinical trials among a sample ...
    • Perceived Discrimination in Health Care Is Associated With a Greater Burden of Pain in Sickle Cell Disease 

      Haywood, Carlton Jr.; Diener-West, Marie; Strouse, John; Carroll, C. Patrick; Bediako, Shawn; Lanzkron, Sophie; Haythornthwaite, Jennifer; Onojobi, Gladys; Beach, Mary Catherine; IMPORT Investigators (Elsevier, 2014-04-16)
      Context Perceived discriminatory experiences in society have been associated with a higher burden of pain among some minority patient populations. Objectives To describe the extent to which patients with sickle cell ...
    • Perceived Discrimination, Patient Trust, and Adherence to Medical Recommendations Among Persons With Sickle Cell Disease 

      Haywood, Carlton Jr.; Lanzkron, Sophie; Bediako, Shawn; Strouse, John J.; Haythornthwaite, Jennifer; Carroll, C. Patrick; Diener-West, Marie; Onojobi, Gladys; Beach, Mary Catherine; IMPORT Investigators (Springer Nature, 2014-09-10)
      BACKGROUND Adults with sickle cell disease (SCD) report experiencing discriminatory behavior from some healthcare providers. The impact of discrimination on health outcomes in SCD, including adherence to physician ...
    • An Unequal Burden: Poor Patient-Provider Communication and Sickle Cell Disease 

      Haywood, Carlton Jr.; Bediako, Shawn; Lanzkron, Sophie; Diener-West, Marie; Strouse, John; Haythornthwaite, Jennifer; Onojobi, Gladys; Beach, Mary Catherine; IMPORT Investigators (Elsevier, 2014-05-23)
      Objective To assess disparities in the quality of healthcare provider communication experienced by African-American adults with and without sickle cell disease (SCD) in the U.S. Methods Poor provider communication was ...