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    Problematic Hospital Experiences Among Adult Patients With Sickle Cell Disease

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    nihms340922.pdf (381.9Kb)
    Links to Files
    https://www.muse.jhu.edu/article/400755
    Permanent Link
    10.1353/hpu.2010.0940.
    http://hdl.handle.net/11603/18893
    Collections
    • UMBC Faculty Collection
    • UMBC Psychology Department
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    Author/Creator
    Lattimer, Lakshmi
    Haywood, Carlton Jr.
    Lanzkron, Sophie
    Ratanawongsa, Neda
    Bediako, Shawn M.
    Beach, Mary Catherine
    Date
    2010-11-04
    Type of Work
    11 pages
    Text
    journal articles postprints
    Citation of Original Publication
    Lattimer, Lakshmi, Carlton Haywood, Jr., Sophie Lanzkron, Neda Ratanawongsa, Shawn M. Bediako, and Mary Catherine Beach. "Problematic Hospital Experiences among Adult Patients with Sickle Cell Disease." Journal of Health Care for the Poor and Underserved 21, no. 4 (2010): 1114-1123. doi:10.1353/hpu.2010.0940.
    Rights
    This item is likely protected under Title 17 of the U.S. Copyright Law. Unless on a Creative Commons license, for uses protected by Copyright Law, contact the copyright holder or the author.
    © Johns Hopkins University Press 2011
    Abstract
    Background. Adults with sickle cell disease (SCD) have often reported difficulties obtaining care during vaso-occlusive crisis (VOC) in qualitative studies. Methods. We measured the experiences of 45 SCD patients who received in-hospital care for VOC using the Picker Patient Experience Questionnaire (PPE-15), and used the one sample binomial test to compare with national norms. Results. Most SCD patients reported that they were insufficiently involved in decisions (86%), staff gave conflicting information (64%), it wasn't easy to find someone to discuss concerns (61%), doctors' answers to questions were not clear (58%), nurses' answers to questions were not clear (56%), doctors did not always discuss fears and anxieties (53%), and nurses did not always discuss fears and anxieties (52%). A greater percentage of SCD patients than the U.S. sample in 9 of 12 areas reported problems. Conclusions. Further research is needed to determine the consequences of and potential interventions to improve these poor experiences.


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    Albin O. Kuhn Library & Gallery
    University of Maryland, Baltimore County
    1000 Hilltop Circle
    Baltimore, MD 21250
    www.umbc.edu/scholarworks

    Contact information:
    Email: scholarworks-group@umbc.edu
    Phone: 410-455-3021


    If you wish to submit a copyright complaint or withdrawal request, please email mdsoar-help@umd.edu.