Pre-Gene Therapy Assessment of Patient Readiness and Resilience: Best Practices and Recommendations for Implementation in Sickle Cell Disease

Simple item page
dc.contributor.authorHardy, Steven
dc.contributor.authorValrie, Cecelia
dc.contributor.authorPorter, Jerlym
dc.contributor.authorRivera, Maria
dc.contributor.authorJonassaint, Charles
dc.contributor.authorSil, Soumitri
dc.contributor.authorCrosby, Lori
dc.contributor.authorBediako, Shawn M.
dc.contributor.authorAndrews, Clayton
dc.contributor.authorWoolford, Teonna
dc.contributor.authorColeman-Cowger, Victoria
dc.contributor.authorCure Sickle Cell Initiative (CureSCi) Patient Readiness and Resilience Working Group
dc.date.accessioned2023-08-30T18:28:51Z
dc.date.available2023-08-30T18:28:51Z
dc.date.issued2023-01
dc.description.urihttps://curesickle.org/system/files/20230705_CureSCI_WhitePaper.pdfen
dc.format.extent24 pagesen
dc.genrewhite papersen
dc.identifierdoi:10.13016/m2vfe8-2e5q
dc.identifier.citationHardy, Steven, et al. Pre-Gene Therapy Assessment of Patient Readiness and Resilience: Best Practices and Recommendations for Implementation in Sickle Cell Disease. Bethesda, MD: NIH, 2023. https://curesickle.org/system/files/20230705_CureSCI_WhitePaper.pdf.en
dc.identifier.urihttp://hdl.handle.net/11603/29449
dc.language.isoenen
dc.publisherNIHen
dc.relation.isAvailableAtThe University of Maryland, Baltimore County (UMBC)
dc.relation.ispartofUMBC Psychology Department Collection
dc.relation.ispartofUMBC Faculty Collection
dc.rightsPublic Domain Mark 1.0*
dc.rightsThis is a work of the United States Government. In accordance with 17 U.S.C. 105, no copyright protection is available for such works under U.S. Law.en
dc.rights.urihttp://creativecommons.org/publicdomain/mark/1.0/*
dc.titlePre-Gene Therapy Assessment of Patient Readiness and Resilience: Best Practices and Recommendations for Implementation in Sickle Cell Diseaseen
dc.typeTexten
dcterms.creatorhttps://orcid.org/0000-0001-5696-2805en

Files

Original bundle

Now showing 1 - 1 of 1
Thumbnail Image
Name:
20230705_CureSCI_WhitePaper.pdf
Size:
510.64 KB
Format:
Adobe Portable Document Format
Description:
Download

License bundle

Now showing 1 - 1 of 1
Thumbnail Image
Name:
license.txt
Size:
2.56 KB
Format:
Item-specific license agreed upon to submission
Description:
Download

Collections

UMBC Psychology Department
UMBC Faculty Collection