Pre-Gene Therapy Assessment of Patient Readiness and Resilience: Best Practices and Recommendations for Implementation in Sickle Cell Disease

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dc.contributor.authorHardy, Steven
dc.contributor.authorValrie, Cecelia
dc.contributor.authorPorter, Jerlym
dc.contributor.authorRivera, Maria
dc.contributor.authorJonassaint, Charles
dc.contributor.authorSil, Soumitri
dc.contributor.authorCrosby, Lori
dc.contributor.authorBediako, Shawn M.
dc.contributor.authorAndrews, Clayton
dc.contributor.authorWoolford, Teonna
dc.contributor.authorColeman-Cowger, Victoria
dc.contributor.authorCure Sickle Cell Initiative (CureSCi) Patient Readiness and Resilience Working Group
dc.date.accessioned2023-08-30T18:28:51Z
dc.date.available2023-08-30T18:28:51Z
dc.date.issued2023-01
dc.description.urihttps://curesickle.org/system/files/20230705_CureSCI_WhitePaper.pdfen_US
dc.format.extent24 pagesen_US
dc.genrewhite papersen_US
dc.identifierdoi:10.13016/m2vfe8-2e5q
dc.identifier.citationHardy, Steven, et al. Pre-Gene Therapy Assessment of Patient Readiness and Resilience: Best Practices and Recommendations for Implementation in Sickle Cell Disease. Bethesda, MD: NIH, 2023. https://curesickle.org/system/files/20230705_CureSCI_WhitePaper.pdf.en_US
dc.identifier.urihttp://hdl.handle.net/11603/29449
dc.language.isoen_USen_US
dc.publisherNIHen_US
dc.relation.isAvailableAtThe University of Maryland, Baltimore County (UMBC)
dc.relation.ispartofUMBC Psychology Department Collection
dc.relation.ispartofUMBC Faculty Collection
dc.rightsThis is a work of the United States Government. In accordance with 17 U.S.C. 105, no copyright protection is available for such works under U.S. Law.en_US
dc.rightsPublic Domain Mark 1.0*
dc.rights.urihttp://creativecommons.org/publicdomain/mark/1.0/*
dc.titlePre-Gene Therapy Assessment of Patient Readiness and Resilience: Best Practices and Recommendations for Implementation in Sickle Cell Diseaseen_US
dc.typeTexten_US
dcterms.creatorhttps://orcid.org/0000-0001-5696-2805en_US

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