The Measure of Sickle Cell Stigma: Initial findings from the Improving Patient Outcomes through Respect and Trust study

dc.contributor.authorBediako, Shawn M
dc.contributor.authorLanzkron, Sophie
dc.contributor.authorDiener-West, Marie
dc.contributor.authorOnojobi, Gladys
dc.contributor.authorBeach, Mary C
dc.contributor.authorHaywood, Carlton Jr
dc.date.accessioned2020-06-12T18:57:52Z
dc.date.available2020-06-12T18:57:52Z
dc.date.issued2014-07-04
dc.description.abstractResearch about the influence of stigma on health outcomes in sickle cell disease is limited. We administered the recently developed Measure of Sickle Cell Stigma to 262 patients in the United States. The Measure of Sickle Cell Stigma yielded very good internal consistency and four interpretable factors. Significant associations among stigma, pain-related healthcare utilization, and perceived disease severity were observed for three of the four stigma factors (F range = 2.78–5.44). The Measure of Sickle Cell Stigma appears to be a useful tool for measuring disease-specific stigma among adults living with sickle cell disease, and further assessment of its clinical utility is warranted.en_US
dc.description.sponsorshipThe authors thank all members and participants of the IMPORT study for their time and generous contributions. The full list of IMPORT investigators includes the authors and the following individuals—Johns Hopkins Investigators: Tanita Woodson, Jordan Wilks, Benjamin Ajiboye, Jennifer Haythornthwaite, and Nina Shah. Howard University Investigators: Abiodun Akintilo, Margaret Fadojutimi-Akinsiku, Patricia Oneal, MD, Adriana Medina, Seyed Mehdi Nouraie, John Kwagyan, Kemi Owoyemi, and Ronke Ajala. Study data were collected and managed using REDCap (Research Electronic Data Capture) tools hosted at Johns Hopkins University. REDCap is a secure, web-based application designed to support data capture for research studies, providing (a) an intuitive interface for validated data entry, (b) audit trails for tracking data manipulation and export procedures, (c) automated export procedures for seamless data downloads to common statistical packages, and (d) procedures for importing data from external sources. This study was funded by a grant from the National Heart, Lung, and Blood Institute (NHLBI; #1R01HL088511-01A1). Dr Bediako's effort was supported by a Career Development Award from the NHLBI (#1K07HL108742-03). Dr Lanzkron's effort was supported by a Career Development Award from the NHLBI (#1K23HL083089-01). Dr Haywood's effort was funded by a Career Development Award from the NHLBI (#1K01HL108832-01).en_US
dc.description.urihttps://journals.sagepub.com/doi/10.1177/1359105314539530en_US
dc.format.extent16 pagesen_US
dc.genrejournal articles postprintsen_US
dc.identifierdoi:10.13016/m2c5ed-s5qf
dc.identifier.citationBediako, S. M., Lanzkron, S., Diener-West, M., Onojobi, G., Beach, M. C., & Haywood, C., Jr (2016). The Measure of Sickle Cell Stigma: Initial findings from the Improving Patient Outcomes through Respect and Trust study. Journal of health psychology, 21(5), 808–820. https://doi.org/10.1177/1359105314539530en_US
dc.identifier.urihttps://doi.org/10.1177/1359105314539530
dc.identifier.urihttp://hdl.handle.net/11603/18886
dc.language.isoen_USen_US
dc.publisherSAGEen_US
dc.relation.isAvailableAtThe University of Maryland, Baltimore County (UMBC)
dc.relation.ispartofUMBC Psychology Department Collection
dc.relation.ispartofUMBC Faculty Collection
dc.rightsThis item is likely protected under Title 17 of the U.S. Copyright Law. Unless on a Creative Commons license, for uses protected by Copyright Law, contact the copyright holder or the author.
dc.rightsThis is not the final published version. Shawn M Bediako, Sophie Lanzkron, Marie Diener-West, Gladys Onojobi, Mary C Beach, and Carlton Haywood, Jr, The Measure of Sickle Cell Stigma: Initial findings from the Improving Patient Outcomes through Respect and Trust study,Journal of Health Psychology (Volume Number 21 and Issue Number 5) pp. 808–820. Copyright ©2020 SAGE Publications. DOI: 10.1177/1359105314539530.
dc.titleThe Measure of Sickle Cell Stigma: Initial findings from the Improving Patient Outcomes through Respect and Trust studyen_US
dc.typeTexten_US

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