“They Just Took Him Out of My Life”: Nursing Home Care Partner Experiences During the COVID-19 Pandemic

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dc.contributor.authorKusmaul, Nancy
dc.contributor.authorMiller, Vivian J.
dc.contributor.authorCheon, Ji Hyang
dc.date.accessioned2022-03-07T15:48:10Z
dc.date.available2022-03-07T15:48:10Z
dc.date.issued2022-02-01
dc.description.abstractOn March 13, 2020, the Centers for Medicare and Medicaid Services (CMS) closed nursing homes to visitors to protect nursing home residents from COVID-19 and they were closed for a year. There has been limited research on the impacts of this closure on family member/resident dyads. This study describes the impacts of visitation restrictions on residents and their family caregivers from the caregivers’ perspectives. Family members and close friends “care partners” were recruited via social media and email listservs from November 2020 to February 2021. All participants completed a survey on google forms. Researchers completed semi-structured one-on-one interviews with interested participants via Web Ex. Transcripts were analyzed using rapid analysis techniques. Thirty-one family caregivers completed the survey and seventeen completed interviews. The majority of interview participants (n=11) were adult children, the remaining (n=5) were spouses (wives) and a parent whose child was in a nursing home (n=1). They reported experiencing disconnect from their residents, confusion on the part of the residents, and sadness. All family caregivers were of the opinion that their residents with dementia declined during the closure period, which was most notable when they no longer recognized their family caregivers when they were able to see each other again. All family caregiver participants expressed the opinion that they and their residents suffered irreparable harm from the prolonged separation. Providers, policy makers, and researchers must use the lessons learned from COVID-19 in future situations. Protecting residents from a deadly disease is important, but we cannot condone long term separation from family caregivers again.en_US
dc.description.urihttps://journals.healio.com/doi/abs/10.3928/00989134-20220111-02en_US
dc.format.extent14 pagesen_US
dc.genrejournal articlesen_US
dc.genrepostprintsen_US
dc.identifierdoi:10.13016/m2vcqr-nqi0
dc.identifier.citationKusmaul, Nancy, Vivian J. Miller and Ji Hyang Cheon. “They Just Took Him Out of My Life”: Nursing Home Care Partner Experiences During the COVID-19 Pandemic. Journal of Gerontological Nursing 48 (Feb. 1, 2022), no. 2. https://doi.org/10.3928/00989134-20220111-02en_US
dc.identifier.urihttps://doi.org/10.3928/00989134-20220111-02
dc.identifier.urihttp://hdl.handle.net/11603/24354
dc.language.isoen_USen_US
dc.publisherHealioen_US
dc.relation.isAvailableAtThe University of Maryland, Baltimore County (UMBC)
dc.relation.ispartofUMBC School of Social Work
dc.relation.ispartofUMBC Faculty Collection
dc.rightsThis item is likely protected under Title 17 of the U.S. Copyright Law. Unless on a Creative Commons license, for uses protected by Copyright Law, contact the copyright holder or the author.en_US
dc.rightsAccess to this item will begin on 2/1/2023
dc.title“They Just Took Him Out of My Life”: Nursing Home Care Partner Experiences During the COVID-19 Pandemicen_US
dc.typeTexten_US
dcterms.creatorhttps://orcid.org/0000-0003-2278-8495en_US

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