An Unequal Burden: Poor Patient-Provider Communication and Sickle Cell Disease

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dc.contributor.authorHaywood, Carlton Jr.
dc.contributor.authorBediako, Shawn
dc.contributor.authorLanzkron, Sophie
dc.contributor.authorDiener-West, Marie
dc.contributor.authorStrouse, John
dc.contributor.authorHaythornthwaite, Jennifer
dc.contributor.authorOnojobi, Gladys
dc.contributor.authorBeach, Mary Catherine
dc.contributor.authorIMPORT Investigators
dc.date.accessioned2020-06-15T16:08:28Z
dc.date.available2020-06-15T16:08:28Z
dc.date.issued2014-05-23
dc.description.abstractObjective To assess disparities in the quality of healthcare provider communication experienced by African-American adults with and without sickle cell disease (SCD) in the U.S. Methods Poor provider communication was assessed by the Provider Communication subscale of the Consumer Assessment of Healthcare Plans and Systems survey. The SCD sample was obtained from participants in a multicenter observational study of healthcare experiences. The national African-American sample data was obtained from published national estimates. Results The SCD sample was more likely than the national sample to report poor communication in 3 out of 4 communication domains: listening (22.3% vs. 11.5%, p < 0.0001); showing respect (26.1% vs. 9.5%, p < 0.0001); and spending enough time (38.3% vs. 16.2%, p < 0.0001). Differences were consistent in young, but not old, patients and showed some variation by self-reported health status and education. Conclusions The communication difficulties experienced by persons with SCD do not appear reducible to their predominantly African-American race, but may result from more disease-specific factors. Practice implications Healthcare providers should take particular care in recognizing and demonstrating recommended communication skills with SCD patients as these patients may be particularly vulnerable to, and cognizant of, poor quality interactions.en_US
dc.description.sponsorshipThe authors confirm that all patient/personal identifiers have been removed or disguised so the patient/person(s) described are not identifiable and cannot be identified through the details of the story. The authors thank all members and participants of the IMPORT study for their contributions. The full list of IMPORT investigators includes the authors, as well as the following individuals – Johns Hopkins Investigators: C. Patrick Carroll, MD; Tanita Woodson, Jordan Wilks, Benjamin Ajiboye, Nina Shah. Howard University Investigators: Abiodun Akintilo; Margaret Fadojutimi-Akinsiku; Patricia Oneal, MD; Adriana Medina; Nouraie, Seyed- Mehdi; John Kwagyan; Kemi Owoyemi; and Ronke Ajala. Study data were collected and managed using REDCap electronic data capture tools hosted at Johns Hopkins University. REDCap (Research Electronic Data Capture) is a secure, web-based application designed to support data capture for research studies, providing: 1) an intuitive interface for validated data entry; 2) audit trails for tracking data manipulation and export procedures; 3) automated export procedures for seamless data downloads to common statistical packages; and 4) procedures for importing data from external sources. This study was funded by a grant from the National, Heart, Lung and Blood Institute (NHLBI) (#1R01HL088511-01). Dr. Haywood’s effort was funded by a Career Development Award from the NHLBI (#1K01HL108832-01). Dr. Lanzkron’s effort was funded by a Career Development Award from the NHLBI (#K23HL083089). The funders played no role in the design and conduct of the study; collection, management, analysis, and interpretation of the data; or preparation, review, or approval of the manuscript. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.en_US
dc.description.urihttps://www.sciencedirect.com/science/article/abs/pii/S0738399114001931?via%3Dihuben_US
dc.format.extent15 pagesen_US
dc.genrejournal articles postprintsen_US
dc.identifierdoi:10.13016/m2a80i-qjhf
dc.identifier.citationCarlton Haywood Jr et al., An unequal burden: Poor patient–provider communication and sickle cell disease, Patient Education and Counseling Volume 96, Issue 2, August 2014, Pages 159-164 (2014), https://doi.org/10.1016/j.pec.2014.05.013en_US
dc.identifier.urihttps://doi.org/10.1016/j.pec.2014.05.013
dc.identifier.urihttp://hdl.handle.net/11603/18889
dc.language.isoen_USen_US
dc.publisherElsevieren_US
dc.relation.isAvailableAtThe University of Maryland, Baltimore County (UMBC)
dc.relation.ispartofUMBC Psychology Department Collection
dc.relation.ispartofUMBC Faculty Collection
dc.rightsThis item is likely protected under Title 17 of the U.S. Copyright Law. Unless on a Creative Commons license, for uses protected by Copyright Law, contact the copyright holder or the author.
dc.rightsAttribution-NonCommercial-NoDerivatives 4.0 International*
dc.rights.urihttps://creativecommons.org/licenses/by-nc-nd/4.0/*
dc.titleAn Unequal Burden: Poor Patient-Provider Communication and Sickle Cell Diseaseen_US
dc.typeTexten_US

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