Realizing Choice: Online Safeguards for Couples Adapting to Cognitive Challenges

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dc.contributor.authorMcDonald, Nora
dc.contributor.authorLarsen, Alison
dc.contributor.authorBattisti, Allison
dc.contributor.authorMadjaroff, Galina
dc.contributor.authorMassey, Aaron
dc.contributor.authorMentis, Helena
dc.date.accessioned2020-10-06T16:38:10Z
dc.date.available2020-10-06T16:38:10Z
dc.date.issued2020-08-11
dc.descriptionSixteenth Symposium on Usable Privacy and Security. August 10–11, 2020, 978-1-939133-16-8
dc.description.abstractThis paper investigates qualitatively what happens when couples facing a spectrum of options must arrive at consensual choices together. We conducted an observational study of couples experiencing memory concerns (one or both) while the partners engaged in the process of reviewing and selecting “Safety Setting” options for online activities. Couples’ choices tended to be influenced by a desire to secure shared assets through mutual surveillance and a desire to preserve autonomy by granting freedom in social and personal activities. The availability of choice suits the uneven and unpredictable process of memory loss and couples’ acknowledged uncertainty about its trajectory, leading them to anticipate changing Safety Settings as one or both of them experience further cognitive decline. Reflecting these three decision drivers, we conclude with implications for a design system that offers flexibility and adaptability in variety of settings, accommodates the uncertainty of memory loss, preserves autonomy, and supports collaborative management of shared assets.en_US
dc.description.sponsorshipThe work is supported by the National Science Foundation grant CNS-1714514.en_US
dc.description.urihttps://www.usenix.org/conference/soups2020/presentation/mcdonalden_US
dc.format.extent13 pagesen_US
dc.genreconference papers and proceedingsen_US
dc.genrepresentations (communicative events)
dc.identifierdoi:10.13016/m2uwvo-cpxi
dc.identifier.citationNora McDonald, Alison Larsen, Allison Battisti, Galina Madjaroff, Aaron Massey and Helena Mentis, Realizing Choice: Online Safeguards for Couples Adapting to Cognitive Challenges, https://www.usenix.org/conference/soups2020/presentation/mcdonalden_US
dc.identifier.urihttp://hdl.handle.net/11603/19726
dc.language.isoen_USen_US
dc.publisherUSENIXen_US
dc.relation.isAvailableAtThe University of Maryland, Baltimore County (UMBC)
dc.relation.ispartofUMBC Information Systems Department Collection
dc.relation.ispartofUMBC Faculty Collection
dc.relation.ispartofUMBC Student Collection
dc.rightsThis item is likely protected under Title 17 of the U.S. Copyright Law. Unless on a Creative Commons license, for uses protected by Copyright Law, contact the copyright holder or the author.
dc.rights© USENIX 2020
dc.titleRealizing Choice: Online Safeguards for Couples Adapting to Cognitive Challengesen_US
dc.typeTexten_US

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